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AgC

RUN FOR RARE”  

Run for a Cause

“Day by Day, hand in hand, we can give Hope”

rrr

A campaign in the awareness of Rare Diseases.

Quick Facts

  • There are 6,000-8,000 rare diseases
  • 75% of rare diseases affect children
  • 30% of rare disease patients die before the age of 5
  • 80% of rare diseases have identified genetic origins
  • Other rare diseases are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative

Source: http://www.psod.org.ph/rare-diseases/

Common” characteristics of rare diseases

  • Rare diseases are often chronic, progressive, degenerative, and life-threatening
  • Rare diseases are disabling: the quality of life of patients is often compromised by the lack or loss of autonomy
  • High level of pain and suffering for the patient and his/her family
  • No existing effective cure for most rare disease

Source: http://www.psod.org.ph/rare-diseases/

Links:

Philippine Society for Orphan Disorders:  http://www.psod.org.ph/

FB Event Page: https://www.facebook.com/events/743612279079684/

February 22, 2015

Greenfield City, Sta. Rosa, Laguna.

Assembly time: 4:30am

Categories/ Fee / Gunstart:

10k            Php 500                    5:00 am
3k              Php 400                    6:00 am
1k              Php 300                    6:10 am

Inclusion: Bib


Online Registration:

How to Register?

1. Deposit the amount corresponding to your desired race category (e.g Php 500 for 10k) to:

BPI Current account: 3361-0040-26
Account name: Philippine Society for Orphan Disorders Inc.

2. Send a copy of your deposit slip to runforrare@yahoo.com

including the following details: NAME(s), CATEGORY, CONTACT NO.

3. Our staff will acknowledged your e-mail. Your BIB can be claimed during the raceday.(wait for further advise for changes)

REGISTRATION FORM

run fot rare reg form

RACE ROUTE

route

RACE BIB

 

bib 10k

bib 3k

bib 1k